spine model

Spina Bifida Resources

Media Type

Online Resource

Reviewed Date

Jul 3, 2026

Body

Spina Bifida is a birth defect that happens when the spine doesn¡¯t form properly. It can cause problems with movement, feeling, or other body functions depending on how severe it is.


This website from the CDC features information on how spina bifida affects infants, toddlers and preschoolers, school-age children, adolescents, and young adults.
Phone: 800.CDC.INFO (800.232.4636)


The Illinois Spina Bifida Association works to improve the quality of life of children, adults, and families living with spina bifida.  
Phone: 773.444.0305  


Provides a definition of Spina Bifida, treatment, prognosis, clinical trials listing, patient organizations related to spina bifida and related publications for consumers to connect to. 
Phone: 800.352.9424


Formerly the Association for Spina Bifida and Hydrocephalus) provides services in the United Kingdom. The website has information on the conditions, treatment, and publications specific to Spina Bifida.
Phone: 01733.555988


The Spina Bifida Association is a national organization that helps people affected by Spina Bifida. It provides support, education, and resources to improve lives and raise awareness.
Phone: 800.621.3141 x807

This content is provided for general informational and educational purposes only and may not be applicable to your unique circumstances. It is not intended to serve as, and should not be relied upon, as medical advice. Always consult a qualified healthcare professional about your specific health needs or concerns. The inclusion of any information or resources does not imply endorsement by Shirley Ryan Âé¶¹APP. See full disclaimer.

? 2025 Rehabilitation Institute of Chicago d/b/a Shirley Ryan Âé¶¹APP

Henry B. Betts MD LIFE Center, 312.238.5433

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